As for this last couple of weeks...like I said, Daniel's surgery went well. Part of brain surgery is that you put an external drain in the head to help with the build up of fluid while the brain swells from the "trauma" caused by messing around with it. That went well until they went to take it out. Daniel hemoraged then. Nobody really knows why, he just did and I was told it was pretty rare for that to happen. He got a really bad headache so he went back to surgery and got another drain. For some reason, probably because Daniel moves a lot, it pulled out of the ventrical (not out of the head) and stopped working. Daniel started having a severe headache. The doctor's were not concerned until the drain started working again. That is how they knew there was a probablem...so after a CT scan Daniel went back into surgery and got the drain put in on the other side of his head because they didn't want to do anymore damage on the right side. The poor child has 5 wholes in his head...the 2 entrance wounds for the scopes and stuff to see what they are doing and the 3 exit wounds for the drains.
The 3rd drain is working really well and has for several days. He has been running a fever, his head still hurts and his eyes and ears as well. He has an outer ear infection (meaning in the canal, not behind the eardrums). He is doing well today and has been slowly getting better over the past week. His last surgery was Sunday night. The physical therapy people and the occupational therapy people were in to see him today. They got him out of bed for the first time since Jan 12 and he walked down the hall. He did really well. I thought he was a lot weaker then he turned out to be.